tag:blogger.com,1999:blog-3431025711709130287.post2259362110478242092..comments2024-03-02T14:58:38.991+00:00Comments on The Stuff of Life: My cancer scan resultsElaine Westwickhttp://www.blogger.com/profile/13193552975884308306noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3431025711709130287.post-18943016289599141672010-08-16T07:06:49.091+01:002010-08-16T07:06:49.091+01:00Thanks for the questions.
1. I’m undergoing BRCA ...Thanks for the questions.<br /><br />1. I’m undergoing BRCA testing with the NHS – a post on this to follow<br /><br />2. I presume this is a hypothetical question as I’m not aware of any “official regulated tests” for these SNPs. Even if tests were available I would tend to trust the data from deCODE, everything I have read suggests the accuracy is very high. I would however need “official regulated” advice from my GP had I come out high risk, and I would be interested to hear how they would respond. <br /><br />The main problem I have with the disclaimer is that I hadn't noticed it (tucked away in tiny font at footer of each decode webpage). Similar words were used in the Service Agreement that you are supposed to read before purchasing the test. Rather than just ticking the box I did spend time reading this, and the relevant wording is deeply buried. I believe that 23andme ask customers to sign something on returning their sample, but there is no double check with deCODEme.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3431025711709130287.post-29231928298934307312010-08-15T21:17:32.202+01:002010-08-15T21:17:32.202+01:00Excellent post!
This was interesting "The de...Excellent post!<br /><br />This was interesting "The decreased risk is reassuring but will not make me lax about using sunscreen. If anything the numbers have made me more vigilant – I didn’t realise that the basal cell carcinoma was so prevalent."<br /><br />I think that this is one of the major benefits (or "personal utility") of this type of test.<br /><br />A couple of questions:<br /><br />1. decode don't test the high risk BRCA variants - do you think you would want to know these as well since you have a family history?<br /><br />2. I you did have a result that put you at the high end of the risk scale for one of the conditions would you accept this and expect your doctor to act on it or would you retest those SNPs via an "official" regulated clinical test?<br /><br />I note that their disclaimer says that "The deCODEme.com website is for informational purposes only and should NOT be used for medical decision making without consulting your physician". This implies that they could be intended for medical decisions by your physician, which makes them more than just information - I don't think that disclaimer works.<br /><br />Of course these are personal questions which I don't expect you to answer if you don't want to.Keith Grimaldihttp://eurogene.blogspot.comnoreply@blogger.com